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Chronic inflammatory connective tissue diseases: Lupus, Scleroderma, Sjogren's syndrome, Poly- and Dermatomyositis, Vasculitis, MCTD Medical searchengines and databanks: General, Medications, Pictures |
| Chronic inflammatory connective tissue diseases |
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| Lupus |
| Lupus around the world Excellent website. Lots of information on lupus, meds, tests, articles, etc. With Forums, chat and lupusbuddies. |
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Lupus Home Page From the Hamline university. Many brochures about different aspects of lupus, but what makes this website so interesting are its mailinglists, which are archived: thousands of questions and answer from patients |
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Living with Lupus The Lupus Foundation of America. Medical info, support, research and lots more. |
| Scleroderma |
| Surviving Scleroderma Excellent site from Sherry Messick. With medical info, tips to cope, press articles, mailinglist, patients' stories, discussion forums, and chat. |
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Scleroderma from A to Z Very complete site from Shelly Ensz, which focuses on the medical and psycho-social aspects: how to cope, info for caregivers, humour, a listing of email lists and chat on the internet). |
| I have scleroderma Here you'll find lots of stories about different types of scleroderma |
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Raynaud's and Scleroderma Association On the site from this British association you'll find soms pictures from raynaud's hands |
| Sjogren's syndrome |
| Dry.org Interesting website. Be sure to click on "A Guide for the Patient". This site also has a mailing list with archives and an interactive library |
| Sjogren's syndrome This website from the Santa Barbara Lupus and Rheumatic Diseases Group consists of a list of links to sources about SS on the internet |
| Poly- and Dermatomyositis |
| Sharon's Myositis Homepage Questions and answers about this diseases. Also has patients' stories, and discussion forum |
| The Myositis Association of America General information on PM and DM. Diagnostic criteria, questions answered bij medical specialists, bulletin board |
| Vasculitis |
| A Savvy Vasculitis The Medzine for Contact, Support and Opinion. Describes the different types of Vasculitis. |
| John Hopkins Vasculitis Center In this excellent site, you'll find a description of different types of vasculitis, with pictures |
| MCTD |
| About MCTD An article from MedicineNet |
| Medical searchengines and databases |
| General |
| MedicineNet Database for patients, allows you to search for diseases and conditions, procedures and tests, and medications |
| Diseases, Disorders and related Topics From the Swedish Karolinska Institutet. MeSH Classified Resources on the Internet for the general public and health care professionals. |
| Medications |
| RXList Type the name of your medication, and you'll get all possible info |
| Pictures |
| Dermatlas: Online Digital Dermatology Image Library Fast and userfriendly site. Use this excellent search engine to find pictures of your skinmanifestations, or click on "Differentials" to look for a diagnosis. |
| Dermatologic Image Database From the University of Iowa College of Medicine. Has pictures from skin manifestations of Dermatomyositis, Lupus en Vasculits. |